Organisation
‘Expertise mapped’ started in 2013 and continues up to and including 2018. The project is funded by the Dutch Government (FondsPGO). In this project different patient organisations for rare diseases collaborate, as they stand stronger together.
Projectleader:
Patient Organisation for Metabolic Diseases (VKS)
Project partners:
 Vasculitis Foundation |
 Patient Organisation for Adrenal Gland Diseases
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Fabry Support & Information Group in The Netherlands |
 Organisation for Adrenal Gland Diseases (BijnierNET)
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Patient Organisation for Pulmonary Fibrosis |
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