Organisation

‘Expertise mapped’ started in 2013 and continues up to and including 2018. The project is funded by the Dutch Government (FondsPGO). In this project different patient organisations for rare diseases collaborate, as they stand stronger together.

Projectleader:

VKS logo transparant

Patient Organisation for Metabolic Diseases (VKS)

 

Project partners:

vasculitis transparant
Vasculitis Foundation

Patient Organisation for Adrenal Gland Diseases

 

 

Fabry Support & Information Group in The Netherlands

BijnierNET-logo
Organisation for Adrenal Gland Diseases
(BijnierNET)

 

 

logo Longfibrose patiëntenvereniging transparant

Patient Organisation for Pulmonary Fibrosis

logo Stichting PHA Nederland vierkant
Pulmonary Hypertension Foundation

 

logo Klub Lange Mensen transparant
Organisation for Tall People

 

Logo anusatresie transparant
Patient Organisation for Anorectal Malformation

 

AA PNH logo transparant
Patient Organisation for Aplastic Anemia &
Paroxysmal Nocturnal Hemoglobinuria

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