About the project

With ‘Expertise mapped’ we visualise the organisation of care for rare diseases from the patients’ perspective. It generates an overview of where expertise for rare diseases can be found, how centres of expertise are organised and what the perceptions, needs and wishes of patients with rare diseases are.
What is a knowledge map?
Scientific publication in OJRD!

Expertise for rare diseases mapped
Abstract - Orphanet Journal of Rare Diseases 2016 11(Suppl 1):143
Abstract - Orphanet Journal of Rare Diseases 2016 11(Suppl 1):143